Tuesday, August 21, 2012

Wake Up Call

Just a little something I took while walking the dog.

Friday I went to be screened to be part of a study on Fibromyalgia, and I had my doubts about my qualifications for the study, but not for the reasons I may actually not qualify.
I thought, just briefly, as I often do that maybe I don't have Fibro- it's all in my head and the pain I feel on a daily basis is actually caused my stress, lack of sleep or some other such ailment yet to be named. I walked into the office thinking I would walk out with nothing to show for my trip except for a few spins around the campus parking lot. I didn't think the experience was going to be easy, but I didn't expect it to be so hard- or rudely awakening (in a good way).
No, I walked in casually, trying not to make a big deal about anything even though I was nervous.  The girl who I met with was nice, she asked me questions about my Fibro that were easy to answer; I felt at ease and understood the tests- I had read the information and I didn't have any questions, and I was totally unprepared.

What I didn't expect was the response I got from the program coordinator, who I think is a nurse, but I'm not 100% positive. She was kind and honest, which I appreciate. More importantly, she knew more about Fibromyalgia than anyone I have ever talked to about it has. And more importantly than that, she opened my eyes to my reality.

For years, I have told myself that I can do this on my own and that nothing has changed. I told myself I could manage my pain through diet and exercise, and I let my fear of the unknown get in the way of the truth. The truth is, I can't. I can't do this alone or "naturally." Now that I think about it, the idea is almost absurd.
There I sat, in the chair in the lab, ready to give a blood sample, find out the next steps in this process, and go home to have a glass of wine and watch the sunset from my patio. What happened was an outburst of tears, something that has become pretty regular, and a reality check. I sat there, and listened as the program coordinator told me I hadn't quite registered enough on their scale for the study- I was too hypersensitive and they needed more. I won't go into the details of the screening process, but needless to say, I was floored. I thought I was in a good place, at least in a functioning place. 
She was surprised to learn I am not treating my FMS with any medications, and even more surprised when I told her I was trying to "do it naturally." I felt my eyes water, the lump in my throat, and I knew I didn't have control. What she said next was probably the only thing I needed to hear- I needed help and I didn't have to go through this alone.
She proceeded to explain how Fibromyalgia affects the brain, the role of Norepinephrine and Dopamine, and how there is a basic chemical imbalance in the brain of a person with FMS. She explained that the problem is not just the pain in the muscles, but also the chemical imbalance in the brain that can often lead to increased hypersensitivity- both physically and emotionally (hence the sporadic, uncontrollable crying- no seriously, she said the tearfulness is due to the hypersensitivity to everything). Without treating the chemical imbalance, it is almost impossible to treat the physical pain. She confirmed that I do have Fibro, especially since I have been diagnosed by a rheumatologist, that it's not all in my head, but often FMS patients feel that way.
I walked out feeling a little shaken up, but realized I needed to get help. I realized I can't do it by myself, and that's really ok.  In the long run, diet and exercise are going to help and need to be part of my treatment, but it can't be the only form of treatment. I've been more aware since I left the office; I've paid more attention to what I am doing and am trying to stop myself from over doing anything- so I won't spiral into more pain.

I've already made my doctors appointment to get a referral for a rheumatologist; hopefully for one who understands Fibromyalgia, who won't refer to it as "a junk diagnosis," and will be able to find a medication that will work for me. I will be going back in a week for a second try at the screening, fingers crossed it will go well.

Friday, August 17, 2012

Friday Night and Everything is Alright

Alright, Alright

I have been looking forward to today all week. I know, it's Friday, who hasn't been, right? Summertime Fridays typically include a post-work week beverage (lately it's been wine), a little grilling, and sitting on the patio with the hubsters while the kids run around in the yard. I, like most people with a M-F/9-5, look forward to the ritual that is Friday. 
This Friday will be different though. Today, I will be leaving work a little early to be screened as a potential participant in a Fibromyalgia study.  I've never participated in anything like this before, although once considered it several years ago.  I didn't participate in the first study for one particular reason: the side effects outweighed the benefits of the risk, and that scared me.

Avoidance is not always the best medicine

After having a not so positive experience with medications in 2008, I've avoided pharmaceutical treatment of my condition. In part, my avoidance comes from fear; I've been afraid of the side effects, afraid of the cost, and mostly afraid that the medication just won't work. The other part of my avoidance is a combination of my dislike for pharmaceutical companies and my desire to treat my Fibro symptoms as naturally as I can. Let's be honest, there isn't a magic pill for EVERYTHING, if there were (and it didn't cost your weight in gold), we would have a cure for AIDS, cancer, and any other disease that plagues our world. 
Sometimes it takes exercise and eating right to be healthy, and the responsibility for our health falls on us. I don't expect my husband, brother, mother, or doctor to tell they are sorry for my health issues; they aren't the cause of my condition and technically, I'm not either. However, I am in control of how I treat my condition and am therefore responsible for making sure it doesn't interfere with my daily life too much.
So, I have been avoiding prescription medications for my Fibro for some time, relying too much on over the counter, anti-inflammatory medications (which are just not enough for someone with my high level of pain). 

Diving In

Friday. Today. That's when I will be screened for the new study. I won't be going into details about it (unless they say I can). I stuck my big tow in and weighed the risk of the side effects against the benefit of participating. The side effects don't seem as bad as the first time I considered participating (less likely to gain weight, sweat more, and feel dizzy). I'm going completely out of my comfort zone to try this, to be part of an experiment that may help the Fibromyalgia community and potentially myself.  The thing is, I'm looking forward to it. I'm not as stressed about the side effects, but am more concerned I won't qualify.  What makes me look forward to the study the most though, is that there is a potential for the pain to stop. I would love to know what its like to live on a pain scale of 2, 3, or 4, and not a 6 or higher. I'm hoping I get to experience that, even if it's only for a 10 week trial.
I'll let you know how it goes.

Wednesday, June 6, 2012

Damn you Fibro, I'm trying to write thesis!

I've been trying to work on my thesis for over 1 semester or just around 5 months. At this point I feel like I should give up and forget about the whole thing. I'm tired, achey and kind of out of it. I've had espresso and still can't shake the fatigue. I want to ignore all of that, and crunch down on my thesis work because I love what I want to do and want nothing more than to focus on it.

But I can't; my body isn't letting and the Fibro is winning. I don't want it to win.

Do I take my own advice and get rest? I'm not even sure I have the choice, but I want so badly to pretend I don't have this condition. I want the time back that I've lost. I want the memories back I can't seem to find. I want my masters without risking my health. I feel like I've been robbed of so much and I want so badly to have it all back.

Trying to find the strength to go on is half the battle for me and its made writing my thesis twice as complicated as I thought it would it be. I don't know if I'll finish. I hope that I can and I hope that will be enough to keep me going.

For tonight, I'm going to sink into my bed and try to sleep the pain away.

Sunday, May 20, 2012

Remembering: of Myself, Part I

This how I started writing this post:
There are times when I feel great- and it shows. I wake up well rested, the dark circles under my eyes are almost gone, it doesn't hurt to put my feet on the floor when I get out of bed, and I'm not dragging myself through the shower just to throw something on at the last minute.  Those are my favorite days; those precious mornings I rarely get where I truly am putting my best foot forward. With Fibro, I don't get those days often, and so I try and make the best of them.

I had to stop there because I didn't want to lie, to myself or others.

I wanted to express the importance of what "my good days" look like; the days when my mind isn't clouded with Fibro fog and I generally feel pretty good. I wanted to focus on how hard it is sometimes to just get out of bed, but when you do and you feel good its important to let yourself reflect that in your outward appearance and demeanor. I really do feel strongly, at least for myself anyways, that it is important to look good when you feel good because that feeling carries you through the day and the positive attitude you share can spill over into days afterwards. But, I find this really difficult to share and to describe. It is by no means a simple task to do everyday and it is one I previously took for granted. The ability to get out of bed in the morning, to go through the motions of the day, when you know the moment you open your eyes that you aren't quite sure if your feet will hurt when they touch the ground, or if the water in the shower will wake you up or lull you back to sleep.

What keeps coming into my head when I think about remembering to love myself is to not forget who I am.  I find it easy to forget myself, and maybe that is also a symptom of living in the world we live in.  It's as though in my fog, in my struggle to live with Fibromyalgia and to just be human, I lose who I am and my sense of self is constantly being diminished or challenged. I know we all struggle- it's the human condition.  We live our lives trying to figure out who we are as a person in our social worlds (do you see what I just did there- sociologist geek shinning through!). I can't stand losing myself in the shuffle of life and I know there has to be away around that...or maybe that is just part of the struggle; to not forget.


I know I am a a bit different anyways- I always have been and have been described by others as "being cut from a different cloth". I have almost never felt like I could fit in anywhere, and yet find myself the constant social butterfly who can chameleon my way into any social situation (for better or for worse). Because of all these things, I find myself forgetting who I am in a sense.  I do not mean this literally, but I know when I am myself again because I sort of wake up. The fog lifts and my mind is clear again.  My convictions always become stronger and I remember that, even in the most difficult of times, I know who I am, what I believe, and what I am willing to fight for.  I am all at once reminded of how I got to where I am, and why I do the things I do. 


I remember and I refuse to let the Fibro, or anyone or anything, to take that away from me.  I have to remind myself that when I get dressed, I am beating my Fibro.  When I put make-up on it is my "war paint" for the day. When I stand firm in my beliefs and respond accordingly, no one is speaking for me but myself. 
When I remember, it is an act of both defiance and self-preservation.

Sunday, April 29, 2012

Eating Well, Living Well

A Period of Adjustment

The first year of my diagnosis was weird. I don't know how else to describe it.  I went through a lot of basic adjustment, trying to get a grip on my health, to gain a new understanding of my body, and to figure out what the heck I was supposed to do next.  Prescriptions were the first thing that came along with the diagnosis. I remember being prescribed Tramadol for the pain; I can hear the jokes I used to make with a then friend of mine, "Take two and call me in the morning." I can laugh at it now, not that I didn't then, but after a while two didn't really cut it and it really wasn't funny anymore.

As many women do, I experienced a lot of body issues growing up; I was athletic (I played soccer and lacrosse in middle school and my freshman year of high school, and was a member of the women's lacrosse club in college), but not enough to have really sculpted muscles.  I'm on the short side, and have the frame for an athlete, but not enough drive for it to be a huge part of daily schedule (I'll talk about exercise in another post, because I, of course, have my two cents on it and it may surprise you). I never thought of myself as thin, just healthy, and that was all I really wanted: to look and feel healthy. When I the pain started, I found it difficult to move, to get out of bed, and just live. When I started on the prescription pain killers, it helped enough to get me to my job and to my parent's house, and occasionally to the grocery store for food and to cook for myself. In all honesty, I didn't really feel like it though. I found myself gaining weight here and there, whereas the year before I was eating healthy and going to the gym for a little cardio and strength training.

The more pain I was in, the more I stopped going to the gym and the more comfort food I let myself have.  Eventually, the pain medication I had was not enough, and I would increase my dosage (bad girl!). The combination of all these things lead to more weight, which lead to more pain- it's a cycle really, and it was trap I fell into.  The healthy image I wanted for myself was slipping away, and in 2008 it became worse.

I had started a new job, which ended up being really stressful, so of course my pain levels increased and my then prescription did little to alleviate. With my new job came a lot of time in the car and the need for excessive energy (it was a marketing job- I had to be a peppy little cheerleader for 90% of my day).  Since I was on the road a lot and needed "extra energy" (that's almost funny now too), I would down large amounts of energy drinks, and stop for a quick bite to eat at the nearest fast food joint- usually some place I could get a fully loaded cheeseburger. I even saw a new doctor to treat my pain, who put me a drug cocktail of Lyrica, Abilify, and Lexapro. I'm sure that combination works for some people, but for me, I found myself lethargic, my digestive track was messed up, and was almost unable to drive (not what you want when you are in marketing). To combat this, I chugged more energy drinks, switching to sugar free thinking it would be "better" for me. Ha! In one month, I gained 40 lbs and felt no better than I had before. I was told there was a period of adjustment, and everything would level out, and blahblahblah.  After almost three months, I had to stop. It wasn't working, I was miserable, felt unhealthy, and the cost of buying my meds was like lighting dynamite to my bank account. I couldn't afford any of the costs- financial or health. Beyond my physical discomfort from the weight gain, I started to feel like the inside of my body was a toxic dumping ground.
I had been prescribed physical therapy too, but at $100 a session (for 10 sessions), of which my insurance did not cover a dime, I just couldn't do it. I decided my money would be better spent at the gym with a personal trainer (and I will tell this story in another post, because it too is lengthy).

A few months went by; I was off my little drug cocktail, had started working out at the gym again (very slowly with well planned routines).  I started thinking more about what I had put my body through- the fast food stops, the super size energy drinks, the stress, and the medication. Once the effects of the prescriptions wore off, the feeling of being a walking toxic waste dump really grew on me. In October of 2008, I was terminated from my marketing position for not bringing in the numbers (I was told I was just not mean enough and there were no open positions for me to transfer into).  At first I was devastated, but after a week saw my chance to start over as a blessing in disguise. And so, that January I started working for a local natural food store, and my life changed once more.


"When the going gets weird, the weird turn pro."

I had already started paying more attention to what I was eating. I had started making my own food instead of going out to get it.  It took more time to do, but there is something about being involved in making what I was going to eat that brought my mind and body together. I was starting to feel a greater sense of harmony and balance, and more importantly I was starting to feel less animosity towards my self.  While I was working for the natural food store, I learned more about eating healthy foods, about how important it is to read the labels and to know where your food comes from. I felt like I had been completely miseducated about food up to that point. As a kid, I remember we didn't keep table salt around- it was only used while the food was cooking, but never as seasoning on the table. We didn't eat a lot of red meat, and we always had skim milk. I had always considered my family a healthy family; we didn't overeat and our diets were mostly well balanced. Overall, I felt like I had a healthy attitude towards food.

In the months that followed after beginning my new part-time job, I absorbed information about food and eating well.  I wanted to cleanse my body from all I had put into it, and I felt like I had the means to do so. So, I learned about label reading. I learned about organics versus conventional food. I learned about local versus supermarket suppliers.  I learned about different food movements- like vegetarian, vegan, raw, and gluten free. I learned cooking could be fun, and not a chore. And I learned that living in harmony with my body was so much better than trying to tame it and beating it down with medication. (NOTE: This is NOT the case for everyone, consult your physician about your pain medication and ways to manage your pain. I am only speaking from experience.)

I tried different dietary options, the most challenging being the raw foods diet, which I still want to do, but need to really focus on how it works (its especially tough if you have children). The one thing I have been able to stick to the longest and that helps the most is eating an almost exclusive organic diet. There are some things we don't buy organic because of the cost; rice for example is a staple in our home, and to buy organic brown rice would really break the bank, but we never buy "instant" rice.

If you decide to explore different diet options to help manage your pain, I recommend consulting with your physician and maybe even a nutritionist. Here are some things I have tried, reflected on, and might be an option for you.


Organic Food 

It may seem costly at first, or maybe you don't have access to organic foods (I know some small town grocery stores have a limited selection), but organic foods have become a key player in my pain management.  When I kicked processed food to the curb, and went organic, I not only started losing weight immediately, but I felt better just as quickly. Over time, my body has adjusted to the organic lifestyle, and I can tell when I'm eating organic and when I am not. The more I read labels on food packaging, the more I didn't like what I saw.  If you have never read the label on your food before start wit

Tuesday, April 17, 2012

Perspective: Sharing Words of Wisdom

Mind Deep: Loosening Mind's Bad Habits

Today my mom sent me a link to a wonderful blog she follows, after we had talked last night about relaxation practices. I told her I was blogging, what I was blogging about it, and what direction I want to go with my blog.  Last night it all made sense to me, as it had before I started blogging- my reasons for writing and sharing- and then today I was reading some amazing posts and information from the National Fibromyalgia & Chronic Pain Association, and I realized I am not doing enough to manage my own pain, not in the way I think I should. It shook me a little; how can I share my experiences if I'm not even really taking care of myself the way I should be or even could be. 

Only after I had opened the message from my mom did I realize I can't let negativity become rooted in my mind. My personal negative thinking was (and still is in some respects), feeds on itself and I am guilty of letting it.  I am now following the Mind Deep blog, and recommend that you check it out. Here is the post my mom shared: Mind Deep: Loosening Mind's Bad Habits. 

Oh Sleep, Sweet Sleep

Sleep. I know I am not the only one that loves it, that even thrives from it. Sleep becomes a different experience and an overwhelming necessity when you have Fibromyalgia. There are many aspects to keeping healthy when living with FMS, not all of which are easy to do for anyone, including restful sleep and healthy sleep habits.  I found that sleep seems to be the most common problem and cure when coping with my Fibromyalgia symptoms.  There is of course the obvious issue of lack of sleep that seems to increase pain symptoms or at least becomes the catalyst for increased pain; but I have also found that there is an emotional side-effect of getting too much sleep (which I hope to have as a topic of another post). Be for warned, this is a long post.

Short wicks, Long hours

I used to burn the candles at both ends, especially when I was in college, and  I was really good at it too.  I remember there were days I would get up around 8 in the morning (which is pretty good by some college student standards), I would go to my classes, get a cup of coffee here and there, and maybe hit the library when I needed to.  I had a lot of papers to write because of my field of study, and found myself getting hyper-focused on my assignments. This system really worked for me; I needed the adrenaline rush of an approaching due date to plug through my papers. I rarely hit a wall in my writing, and when I did, there was always a walk to get coffee, smoke a cigarette (yes, I was a smoker- don't judge me!), and get back to it. There were nights I stayed up till 2:30 in the morning working on my assignments, but I had a sort of high of doing things that way. Before I go any further, let me just emphasize that this is NOT HEALTHY. So after a few nights in a row of working the way I did, I would hit the bar with my friends, have a few drinks, and stay until last call. I figured I worked hard, so I was going to play hard. And I did.

I found that after a few months of my not so healthy, inadvisable system, that I would get sick. It wasn't ever anything in particular, just a reoccurring case of tonsillitis. I never really stopped to think about the consequences of my sleep cycle or lack thereof.  Whenever I was sick, I would just allow myself to curl up in my bed and sleep for long lengths, stuff myself with green tea, vitamin C, and on some occasions an anti-biotic (which of course does nothing for a viral cold). I could sleep for what felt like days before I was better, only getting up to go to the bathroom and if well enough, my classes (again, don't judge me, I knew I wasn't contagious).

Even after college, there were occasions I would continue the cycle of staying up too late, getting up too early, doing too much during the week (I worked two jobs for almost 4 years), and rewarding myself by staying out late on the weekends. It did finally catch up to me though. In 2006, I had to have my tonsils removed because of the reoccurring tonsillitis. And, then in 2007 I was diagnosed with Fibro.

After my diagnosis it seemed like I could never get enough sleep. It still feels that way more often than I care to admit, but I know those around me probably get the sense I'm never well rested. The candle, I should say refuses to burn on both ends now.

The Human Body as a Living Battery

When I understood how my body works and how it works with the Fibromyalgia, things just made more sense, but it blew my mind how interconnected things are when it comes to our bodies.  I want to explain what it means to be constantly exhausted, no matter how much sleep I get.  So here it goes: picture your body like a rechargeable battery.  When you sleep, your battery is recharging with energy while your body is also healing and preparing for a new day. Ideally, when you get the recommended healthy, amount of sleep (I think for adults it ranges from 6-8, but please consult your physician, it is different for everyone) you wake feeling refreshed and ready to start your day, your body is prepared to fight off various ailments, and your sense of well-being is overall much better. When your battery is 100%, you feel 100%. When your battery is at 80% (or lower), you feel exactly that- 80%.

When you have Fibromyalgia, your battery doesn't recharge all the time or all the way, or it doesn't feel like you've recharged all the way. For me, I need at least a solid 8 hours of uninterrupted, blissful sleep. I need the type of sleep where all the lights are off, there isn't any extraneous sounds, the temperature isn't too hot or too cold, and my back and neck are well supported. Even under the most ideal circumstances, there are still nights I feel like I am tossing and turning, and I wake up feeling like I needed at least 2 more hours of sleep. Those are the good nights. On bad nights, I wake every couple of hours. 

Recharge, Refresh, and Rejuvenate

With all the variables that effect my sleep cycle, I think it's important to focus on what really matters: how to get a good night's rest when you have Fibromyalgia. Here are some things I have tried and that have worked for me, but I recommend that if you have persistent sleep problems, whether you have Fibromyalgia or not, you should contact your primary care physician. 

Do not burn the candle at both ends! 

This would seem like an obvious factor, but I know for me there are times I don't even know that I'm doing it.  Take some time each day to think about what time you get up in the morning, what activities you do during the day, and what time you usually go to bed.  Think about how you feel not just the next day, but the whole week, after you've stayed up late and gotten up early. If it helps, keep a journal.  There are some amazing apps out there for smartphones (including one I am trying for pain management, which I hope to report on at the end of the month). We all have busy lives, and it seems like there are "24 usable hours in a day" (a line from an old favorite Empire Records), but cramming each hour with something to do, and keeping a tight, back to back schedule is a good way to let your time get out of your control. Remember that you need to focus on you, as much as you need to focus on the other things that occupy your life.  You can't adequately accomplish all of the things you want to do if you aren't well rested.

Listen to your Body

It may sound crazy, but if you listen closely your body is telling you what you need. When you are so tired that you can hardly stand, you need to take a break; stop what you are doing and give yourself a few minutes to become centered, focused on your body, and relax.  If you are at home, and can take a short nap, listen to your body, a nap might be what you need. I find that there are times when I don't want to nap because I'm afraid that I will miss something, but I also have to be aware that if the desire to nap is so strong that I can't ignore it, that is a good indication that napping is exactly what my body needs. Remember you are only human, and if your battery isn't charging, you need to do what you can to keep what energy you do have going. 

Natural and home sleep remedies

This is where I remind everyone that I am not a doctor. I have no medical training. I only have the knowledge I've gained from my own experience and the steps I've taken to gain that knowledge.  I have found that when I feel like I'm about to have a Fibromyalgia flare, and I know I need more rest, a natural approach is what works best for me. 
First of all, I put aside anything that I'm doing- it can wait, my health is important to me. More often than not, the first thing I do is to take a melatonin tab. I use a melatonin lozenge that is made locally and dissolves on my tongue.  Most drug stores carry melatonin supplements in their vitamin section.  If your city/town has a local, natural food store, I would check there first because those types of stores focus on keeping vitamins and supplements as natural as possible. It has been my experience that one night of taking a melatonin often sets my schedule back on track; my sleep is uninterrupted, and I feel more energized in the morning. Sometimes though, it takes more than 1 night of good rest.  If this is the case, I do not take the lozenges for more than 3 days consecutively.  
If on the second day my sleep has not improved, I will add a warm bath with Epsoms salt and a couple of drops of lavender essential oil, followed by lavender lotion before I crawl into bed.  Epsoms salt can be used to help relax sore muscles and can be found very inexpensively at your local grocery store or pharmacy. Lavender is often used to help with relaxation and as an anti-inflammatory. Lavender essential oil can be purchased at most natural food stores and even online. Some major grocery and pharmacy chains also carry lavender Epsoms salt, so you do not need to buy both.  Because I use both independently of the other (I make my own Lavender Salve, which I will of course share the recipe for), I did purchase each.  If I remember correctly, the lavender oil was around $9 for a bottle, which seemed a little steep but a little goes a long way and I have had my bottle for almost 2 years and have not run out yet. 

Relaxation Practices

Here is where I may lose some of you, but I want to be honest and let you know what has helped me.  When I find I can't sleep and it is not due to overwhelming pain, and my mind will not shut off for the night, I find a relaxation practices help.  Relaxation practices can mean different things to different people.  Practices can include an evening stroll- not some extraneous, calorie burning, sweat inducing walk- just a casual evening stroll with a leisurely pace.  When I go on these walks (which I need to more than I have been), I go with my husband, our 3 kids, and our 2 dogs. The troops can be hard to rally, but they all enjoy the time outside once all is said and done. It gives us a chance to be away from cell phones, away from the household "to do list", and away from the TV.  Where we live, it is quiet, but even in the city peace can be found on a walk.  When we walk, there are times my husband and I just listen; we listen to our children talk about their day, their thoughts, and what matters to them.  This is surprisingly peaceful, and I think it has more to do with hearing about their lives and what their thoughts about the world are. In the summertime, I love listening to all the bugs, frogs, and sometimes birds.  The crickets remind me of my childhood in Maryland, and I always find that relaxing.  
When I can, I try to practice yoga.  There is something about focusing your body on balancing in yoga poses that helps me find my center.  I still consider myself a beginner at yoga and it is okay to feel uncomfortable when you first start practicing yoga; it is not something that we all learn at a young age, and the movements and poses may seem unnatural at first.  Most of the poses I do involve focusing on my breathing, usually in a seated or standing position.  There are some wonderful poses that help loosen tension in your back and neck. If you aren't sure where to start with yoga, and you think it may work for you, look for beginner DVD's online that emphasize on evening practices to help calm you. 
Reading is a long time favorite past-time of mine, and I rarely get to read for pleasure anymore (this WILL change once I am finished with my Master's).  I had the chance to read The Hunger Games series this last month, and I really enjoyed it.  The novels were an easy read, but what was more important was that I slowed down, found a comfy place on the couch to read, and was able to relax while doing so.  Reading is a simple pleasure that helps us to slow our pace, and takes to a place of calm and imagination. 
Finally, when I am really stressed out and need to chill (be it at night or during the day), and nothing else seems to work, I meditate.  I don't sing "om" to myself or burn incense (all the time), but I find a comfortable spot to sit (inside or out), I close my eyes, and I slowly describe to myself the most relaxing place I can think of.  Usually, I take myself to the same place: a small, cool stream that runs through an old forest.  I picture the color of the leaves, the roughness of the bark, how the sun is shinning through the treetops, what sounds I might here, the coolness of the water when it touches my finger tips.  I picture myself sitting on a flat rock by the water and I let the sun warm my face, and my finger tips graze the stream. I tell myself about the breeze the wrestles the leaves, and sings around my skin. I let myself go in this place; it is my favorite place and I have never been there physically. Everyone is different, and this may not be the place for you; perhaps you are at peace on the beach by the ocean, or in a meadow under a tree.  Even if you have never thought of a place to "go" when you need some peace, this is an excellent practice for centering yourself and it works your imagination as you describe to yourself this place that brings your internal peace. 




I know how difficult it can be to find a system of sleep that works best, whether you have Fibro or not.  I know that sleep plays a major factor in how well I feel and the severity of my symptoms. Gaining control of your sleep cycle and sleep habits is just one step in helping to manage and cope with the physical pain that is associated with Fibromyalgia.  When you find a method of recharging your batteries and maximizing the amount and kind of sleep you get, your able to better to manage not only your pain symptoms, but your everyday life.  Big tasks don't seem so overwhelming, and as you are better able to care for yourself, you are better able to accomplish your goals, strike out those "to do's", and mostly, to care for others.  Always listen to your body- it is telling you what you need most.